Monday, September 26, 2011

Finally some pictures of Olivia

We took these while in Philadelphia back at the end of August. Sorry for never posting them. See below.

There is not much new news, just waiting for Melanie and her mom to drive up to Philly. Melanie is having some pregnancy pains here and there. Most are work related. Hopefully when she gets up to Philly she'll be able to put her feet up and make it all the way to 40weeks. We are only at 34 weeks now. Delilah was born at 36 weeks, and Nathan was born at 39 weeks. Olivia WILL be our first 40 weeker!

Also another big Thank You to everyone, we just got out our final T-Shirt order, and the next big thing will be blood drive, or Melanie driving up to Philly not sure what will come first. Click on the pictures to make them bigger.



A little Austin Powers reference. It is either her pinky, or she is showing everyone her middle finger! You can see that cute Deck nose that Nathan and Delilah both share.


Tuesday, September 13, 2011

Some news links

Here are some of the links, still working on the others.

What a success

The fundraiser is over and was a great success. We would like to take this opportunity to say thank you to everyone who made that night such a success. We must give credit where credit is due and that is my two wonderful sisters, a fabulous cousin, our many aunts and uncles and cousins and our great extended family who worked their butts off. We can't forget Bob Rupp and his marketing agency, who allowed us to get our story out there and  helped us share our HLHS journey. We were on WGNO, WDSU, FOX8, the Clarion Herald, The Times Picayune to come, and Garland Robinette.  I hope to post those clips next. The bands, food, and auctions lead to great fun and on multiple occasions many people asked who our party planner was. It was us. I know it may be a shocker, but for us it allowed us to feel like we were doing something that would help our sweet angel. One of the hardest parts of this whole situation is the feeling of helplessness. This was our opportunity to do something. Yet, it would not have been a great success without the wonderful turnout we had. The final estimate of guests was somewhere between 600-722. Pretty amazing, huh?
     Reality sank in the next day after all the clean up was done, and Brett and I were speechless. Now our real battle starts and that is the hardest to accept. The fundraiser has given us an escape from thinking about how sick our sweet angel is going to be. Yet, we know that through it all, Olivia has a pretty awesome army behind her. Thank you to everyone! Thank you just doesn't seem like enough sometimes.
  If anyone has pictures from the event, please email them or post them for everyone to see.

Thursday, September 8, 2011

Less than 2 days till fundraiser

This is hectic planning a fundraiser. Luckily we have a good team of friends and family members. Finishing up the final details. Not much Olivia news. We are just trying to publicize the event right now.

Nathan started his public speaking career, see this video of him talking in front of the school after church.


Also for anyone interested click here for a List of Auction Items

Thursday, September 1, 2011

Brett was on WIST 690am

I was interviewed yesterday on WIST 690 AM the Morning Drive. They were so awesome and gave us almost 10 minutes of air time.



If you would like to listen to the rest of the Morning Drive on 690am go to this link

Wednesday, August 31, 2011

Our trip to Philly

      Our trip to Philly went off without a hitch! We arrived very late Monday night and navigated our way to the hotel. Who knew Philly had so many highways and toll roads? Unfortunately, due to lovely Hurricane Irene, we ended up eating in the hotel at 1am because we couldn't find an open food stop. After our quick dinner fix, we were off to bed with much anxiety and high levels of anticipation.
    Tuesday morning, we were up early and on our way to the Children's Hospital of Philadelphia otherwise known as CHOP. I have never seen a hospital so beautiful. The decor is definitely made to put children at ease. We made our way to the Fetal Cardiac Center where we started off with a two and 1/2 hour long ultrasound. They measured everything from her mandible to her toes and all looks fantastic. She, like usual, did not make it easy yet the ultrasound tech was very nice the whole time she struggled. After that, we moved on to the fetal echo. No surprises there, luckily and we moved on to our consultation with Dr. Rhychik, our social worker and the nurse coordinator. They were so very nice and explained the whole process from start to finish about what we could expect, barring any complications.  We then made our way to filling our paperwork and we met with a very nice Maternal Fetal Medicine Doctor. After going through all of the questions, she felt as though I would be better off delivering at the hospital across the street due to my history of perciarditis. The delivery unit at CHOP does completely uncomplicated deliveries because they do not have an adult ICU if something were to go wrong. The doctor tried to get us over to the HUP delivery unit, but wasn't able to so I will have to go meet with them when I go up for good. I was disappointed at first, yet this journey is not about me so Olivia must be top priority. We finally took a tour of their CICU and the cardiac step down unit and asked any last minute questions we had thought of that day. We left the hospital with a sense of comfort and excitement. It all just felt so right.
  We then journeyed to The Ronald McDonald House in Camden, New Jersey. Camden, New Jersey isn't the best neighborhood in New Jersey and they had warned us ahead of time. When we arrived, the house was beautiful. It isn't the best surrounding area, but they have a lot of security and do everything they can to keep it as safe as possible. Because the Ronald McDonald House is run on a first come first serve basis, we placed our name on the waiting list, yet won't know if we will have a room until we get there. If worst case scenario occurs, we can get a room in a local hotel and wait until they have an availability. We also found out that because they don't have medically trained staff on duty, someone old enough to drive must stay with me the whole time in case I go into labor.
   After the long day, we headed back to the hotel for a nap and to recharge before we met one of Brett's best friends from high school for dinner. It was a nice change to talk about something other than our sweet sick angel. That dinner was the first real meal we had had since we got in town and we enjoyed every bite. We didn't realize how much we took our good home New Orleans food for granted. Tabasco sauce will be a necessity when we return.
   This morning, Brett woke up early to talk to a radio station about the fundraiser. Man, was he nervous. I woke up to him practicing and trying to think of anything and everything they might ask. When the phone rang, he pulled it off without a hitch. He was cool, calm and collected.
   Our trip home was uneventful. The plan arrived 20 minutes early and we were very happy to see our two excited munchkins waiting in the car for us. Tonight, fundraising crack down takes place. While we have been away, our two auction queens have been finalizing items and putting together last minute details. We must finish all the program information tonight to get it to the printer tomorrow. Tomorrow night, we have to finalize all food items and whether we have to pick them up or if they will be dropped off. It is hard to believe that this fundraiser that was so far away 3 weeks ago is just around the corner. A week and a half doesn't seem like enough time, but we know with the help of all of our family and friends it will be a huge success.
    Tomorrow, we get back to work, football, homework and time will fly by. 5 and 1/2 weeks, we know will pass before we know it.

Sunday, August 28, 2011

Nathan's 2nd Grade Class wants to help!

This is what his teacher sent out to all the parents in the 2nd grade, we are so touched by his teachers and his school. Here is the letter:

Second Grade Service Project-

Our very own Nathan Williams will be having a baby sister in November. The family has learned that she will be born with a defect called Hypoplastic Left Heart Syndrome. Nathan’s mother will travel to Philadelphia to have Baby Olivia so specialists there can perform surgery on her when she is 3 days old. Without the surgery, Olivia would have no chance at life. She will have 2 additional surgeries by the age of 3 years. Our second grade class wants to help the Williams family throughout the year to provide some comfort during this difficult time. Soooo….

Friday, September 9 will be Olivia’s Heart Day at school! Second grade families will be needed for different responsibilities. Thank you in advance for opening your hearts to the Williams family J


Nathan is also concerned about his recent fame and that strangers will act like they know him now. So strangers you are warned Nathan's guard is never down and he is unfazed by his recent stardom! After all his public speaking career is just kicking off, and and his picture was on the local news 3 times! His first major public speaking engagement will be after church in front of the entire school next week. "Nathan are you nervous," asked Melanie to which he replied "Nope................ well maybe a little!"