Sunday, July 26, 2015

Summer :)

   Even though it can be so hot during the summer, we love to get out there and enjoy time together.
    Olivia is getting ready for big girl school and we have her uniforms and supplies all ready. She has been looking forward to this for so long. She is in a size 5-6 and is growing like a weed. She loves bossing her brother and sister around and loves to swim.
   We have postponed our trip to CHOP until spring because she is doing so well and her doctors don't see the need to mess with what is working well.

Special place in our hearts

     We will be forever grateful to the wonderful Marrone family. Because of them and their beautiful angel Mia, we were able to have someone to talk to in order to get us through the roughest times of my pregnancy and Olivia's diagnosis. It was their unselfish giving of themselves and the story of beautiful Mia that inspired us to be Olivia's biggest advocates. We will be forever in debt to this family for their kindness and generosity. 

In honor of Mia Grace Marrone... a beautiful angel.

Monday, June 29, 2015

Miss sassy pants.....

    Olivia has and always will be a little sassy pants. We have come to expect her to keep us on our toes. Sometimes are more difficult to laugh at than others. I know, it is her fighting spirit that keeps her here and growing everyday. That still doesn't make it easy when she decides that no matter what she isn't going to listen. Her new favorite thing in life is gum. She will do just about anything for one piece. I hope bribery stays just as easy as it is now.
    She has been growing and changing so quickly. It is sad to think she is our last little one and she isn't that little anymore. She is in 5/6 clothes at 3 years old. Before I know it, Delilah and her will be sharing clothes. Below are some pictures from January to June of this year. Enjoy!

Saturday, June 20, 2015

The big day

Today is the big day for the dance recital. We ran into a huge couple of hurdles which included me going to buy light pink tights 15 minutes before the show and dressing her in the hallway, but she did it. She was so excited to get up there and dance. She really loved the end when she got to get her flowers from her family. Her are some pictures of her and Delilah during dance rehearsals and their official dance pictures from this year. 

Saturday, June 13, 2015

Major milestones

      Next Saturday, we will reach a major milestone in Olivia's life. She will attend and dance in her first dance recital. She has relentlessly practiced her tap and ballet dances each night over and over again. She loves getting her bun done and putting on her stage makeup. 
     There are times when we look at her and overlook her hlhs completely.  Then there are times when you just can't.  I was so happy to see that in her class picture you can't even see her zipper (scar). I mentioned it to Brett who thought I was focused on the wrong thing. In my opinion, it was the perfect thing to focus on because when standing next to 13 other 3 & 4 year olds,  you can't see anything different about her. We will always know just how special she is, but we also want her to be normal too. At dance class, she is completely and utterly adorable and our little star. Seeing her dance and smile on that stage will be a dream come true for me.

Sunday, November 2, 2014

Happy 3rd Birthday Princess

We had a fun and exciting party for Olivia's third birthday. We invited friends and family and celebrated with tacos and princesses. Olivia went from sun up to sun down without a nap or even really resting. She has truly turned into a bright and beautiful little girl. Gone are the days of diapers and babies. It is so wonderful to see her personality and how excited she gets over the little things. She is a true ray of sunshine and people flock to her. Since her birth, I have known she was here for a reason and that she had a big job on this earth to do. Yesterday,  watching her with everyone made it crystal clear that she is going to do even greater things than I can imagine. I am blessed to be able to witness her greatness and will forever be in the debt of the wonderful people who helped get her there from CHOP and all over. She is mighty and has quite the sassy roar.

Friday, October 31, 2014

Happy Halloween 2014

Tonight, we enjoyed a great evening trick or treating with friends. Looking at Olivia, who went as Anna from Frozen, run up and down the sidewalks screaming trick or treat and a big thank you, we realize how blessed we are. Exactly three years ago, I was spending the night in a Ronald McDonald house in Philly after trick or treating with kind strangers.  The anticipation of my induction the next morning and all the questions we would be faced with loomed like a huge black cloud. It was truly the last night I took life for granted. We just passed the costume Delilah wore that night down to my niece, because even Olivia is just too big for it now. This is how we seem to spend the majority of our time these days. Olivia is growing and thriving and when asked about how she is... the answer is a simple... sassy as ever. We are so incredibly blessed to be able to enjoy the trick or treats and all of the sassy moments she throws our way. Tomorrow morning, we will celebrate her wonderful third birthday. I just hope that 10 to 15 years from now I can think back and enjoy each Halloween night as much as I have this one. It is so amazing what perspective time can provide.