Sunday, November 2, 2014

Happy 3rd Birthday Princess

We had a fun and exciting party for Olivia's third birthday. We invited friends and family and celebrated with tacos and princesses. Olivia went from sun up to sun down without a nap or even really resting. She has truly turned into a bright and beautiful little girl. Gone are the days of diapers and babies. It is so wonderful to see her personality and how excited she gets over the little things. She is a true ray of sunshine and people flock to her. Since her birth, I have known she was here for a reason and that she had a big job on this earth to do. Yesterday,  watching her with everyone made it crystal clear that she is going to do even greater things than I can imagine. I am blessed to be able to witness her greatness and will forever be in the debt of the wonderful people who helped get her there from CHOP and all over. She is mighty and has quite the sassy roar.

Friday, October 31, 2014

Happy Halloween 2014

Tonight, we enjoyed a great evening trick or treating with friends. Looking at Olivia, who went as Anna from Frozen, run up and down the sidewalks screaming trick or treat and a big thank you, we realize how blessed we are. Exactly three years ago, I was spending the night in a Ronald McDonald house in Philly after trick or treating with kind strangers.  The anticipation of my induction the next morning and all the questions we would be faced with loomed like a huge black cloud. It was truly the last night I took life for granted. We just passed the costume Delilah wore that night down to my niece, because even Olivia is just too big for it now. This is how we seem to spend the majority of our time these days. Olivia is growing and thriving and when asked about how she is... the answer is a simple... sassy as ever. We are so incredibly blessed to be able to enjoy the trick or treats and all of the sassy moments she throws our way. Tomorrow morning, we will celebrate her wonderful third birthday. I just hope that 10 to 15 years from now I can think back and enjoy each Halloween night as much as I have this one. It is so amazing what perspective time can provide.

Saturday, August 16, 2014

Fontaniversary

Yesterday was the 1 year anniversary of Olivia's third surgery, the Fontan. Since then, we have been beyond blessed with her development and health. She is currently seeing the cardiologist every six months and has been given the all clear to grow and thrive. Looking back at pictures and reading blog posts makes it easy to realize how far she's come,  but also made us wonder how we ever did it in the first place? For all of the new moms and dads out there who are trying to figure out how to cope or how to make it through today, the best advice we can give you is enjoy the small moments. We have never enjoyed the smiles, temper tantrums, and birthday parties as we have with Livi.
    Life at this moment couldn't get any sweeter for our Olivia.

Xtw Arm

Thursday, June 19, 2014

Sunshiny day

It has been a while since we have posted anything and we apologize. The saying no news is good news has been the motto that we have been following. Olivia has been given the all clear from her cardiologist for the next six months. Our jobs now, in his words, is to relax and enjoy watching her grow up. That is much easier said then done, because it has seemed like that for the last two and a half years we have been waiting for the other shoe to drop. So, Brett and I have decided we will try to take his advice and just enjoy her sassy, loveable, rebellious two year old self. Currently, we are on a family vacation making memories and exposing the whole family to new experiences. I have included some recent pictures of her swimming, putt putting, and on the beach. As you'll be able to see.. Ms. Olivia is quite the independent little personality that is determined to give us all a run for our money. Hey, we wouldn't have it any other way either.

Tuesday, April 8, 2014

Discharged to followup

Olivia finished all scheduled procedures and was discharged just a few minutes ago. We now head to see her cardiologist Dr. Natarajan. She is super cranky and cant really walk without crashing into things.
   We talked to the cardiologist over the mri study. He recommended we continue to watch one of her pulmonary arteries that goes under her aortic arch. It is normal to be small but hers is one the small side of small. He also said her aortic arch is on the narrow side but with all of the sutures in her veins/arteries from previous surgeries we will have to watch to see if it will grow. The rest of the info from the mri we will get in two/three days. Her echo results we will discuss at this appointment coming up. She has to see someone in ent in 4 weeks.
We had to bribe her with a balloon in order to get her to stop crying. She knows exactly what to do to get her way.

ENT update

Ear tubes are finished and bronchoscopy showed narrowing right below her vocal cords. He couldnt do anything about it now but wants to follow up in six months. He even gave us a copy of the pictures to bring home. Now Olivia is in mri.

Off she goes

They just took her back. She was so good and surprised the whole staff by giving herself her pre-meds. She didnt cry or fuss and took her dolls with hef. Update in a bit.