Monday, September 17, 2012

The one true joy

Bathtime has been the one an only routine that no hospital has ever ruined. You can tell by the sheer joy in her eyes while splashing around.  My advice for soon to be heart moms...pick one routine the hospital can't take away from you.

Wednesday, September 12, 2012

Update on mayo clinic study

Brett and I decided to participate in a genetic mayo clinic study quite a while ago. We all had blood drawn and sent it for processing. I recieved a phone call about the results today. It seems after looking at Olivia's genetic makeup, or chromosomes, she has part of chromosome 12 duplicated. The genetist stated "i don't think it is related to her hlhs, and it has not been a recurrent finding in our study, so far. But, in order to rule out everythibg, we need to make sure it wasnt passed down from you or your husband." I politely thanked her and offered as much blood as she needed.
You would think I would be used to hearing....lab results or anatomy is NOT normal, yet it never gets easier. I foolishly started googling after I hung up, only to find a vast amount of information. In reality, it doesnt really matter what she could have. There is no way to change it and we love her no matter what.
Love you Livi


Recently, we have noticed that olivia at night has been a little more swollen. We had an appointment in two weeks to see the cardiologist, but the worrier in me was thinking worse case scenarios. Congestive heart failure, pulmonary hypertension....only the worst! So, Brett called and they were able to get her in early. Yesterday, as I was getting the lowdown, brett got rear ended. So my dad had to bring her by himself. After an echo, ekg, exam, lab work and chest xray...all was cleared. The cardiologist thinks it is because she is gaining weight, not from compromised heart function. He increased her lasix to see if it helps. We are keeping the fingers crossed.

Saturday, September 1, 2012

10 months old Today!!!

Olivia is the big ten months old today. She is enjoying her first LSU game at home spreading the tiger spirit. It seems like it was just yesterday she arrived but it has also been the longest, most worry filled ten months too. We love our baby girl!!!!