First peds appointment

Olivia had her first appointment with Dr. Shourbaji. She was an angel. She showed off all of her tricks by smiling and cooing. She received her immunizations that she needed and then had her blood drawn to check her electrolytes that we have been supplementing. Still, no results yet but I am hoping she will be able to get rid of some meds soon. After all of that, she was exhausted poor thing. She slept which allowed me to do some homework. Now, she sleeps through this horrid Lsu game.

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at the dome baby

First game this season

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Who Dat!!

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First cardiology appt in Nola

We took Olivia to her first cardiology at children's hospital. We saw a cardiologist that wasn't our intended one. It was actually the one we didn't want. But we rolled with it. They did an ekg, weighed her and moved us to the echo room. At this point, it was time for her to eat and she was a tad fussy. I popped the bottle in and walked into the room. The echo tech gave me this look that could kill. I shook it off and tried to get Olivia to fall asleep. Much to my disappointment and the echo tech, it was not going to happen. She wiggled and whined for the 25 mins it took for them to do it. After they were done, we went back to the other room and waited for the doctor. When the doctor came in, she raved about how excellent CHOP is and how great the surgeons are. We completely agree. Then she stated how big of a supporter she is of sedation. She thinks it makes appointments go faster and is easier on everyone involved. I was outraged. When she saw my face she said, "she never had a sedated echo at chop? " I was quick to say no. Then she moved on to her meds. She thinks the lovenox is unnecessary. Then she stated how she was shocked all she is on is lasix for her cardiac function. All of her babies are on captopril. I again gave her a look like no way in help and Ishe then commented, "well I guess u should check with her real cardiologist".  So right there, I got the gist of being unwelcomed. When we left, I filled Brett in and we both agreed we needed to talk to the cardiologist at chop before we agree to anything. And that is where we currently stand. We are waiting to hear back from them before any decisions are made. Our next dreaded appointment there is Jan 19th.

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Blah

So being home hasn't been all I thought it would be.  The idea and excitement were ideal but reality has hit hard. When people ask... you must be so happy to be home.. I politely say yes, but really want to say what do u think?  I am now juggling three children instead of just one along with all of the other motherly and household duties. I have also realized I never really got angry at the diagnosis. I just got sad and busied myself with projects. Now, I am angry. I didn't ask for this. I didn't want my entire family to have to sacrifice their time and energy for me. And I still struggle with the why me question. I look at Olivia everyday and thank god for how healthy she is, but I also want to take a wrench and throw it at him. I have also seen quite quickly how fake some people can be and have endured nicely the mean comments with a smile. Yet, the biggest issue I have is not that I have to endure this but the fact that sweet Olivia has no say in the matter either.

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Visitor of the day is Nana

She has patiently waited for her turn and is loving every second of her visit with our littlest princess.

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Go Saints!

Olivia has transitioned beautifully to her home. She does enjoy when Nathan and Delilah leave for outings because she can then really sleep. When they are home, it can be very loud. She hit the 10 pound mark,so we must be doing something right. In this picture, she is cheering on the saints. Our new years day is more subdued this year but still a good one.

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