Tuesday, January 24, 2012

A long night

Last night as with any night in a hospital with a child was very long. Olivia had bloodwork drawn and it all came back normal. Her ekg, echo, and chest xray were all normal. She spent all night on oxygen and they just turned it off to see how she will do. As many of you know, I am flying back tonight to stay with the kids and go back to work. Brett will stay with her and keep me and everyone as informed as possible. I can't spend much time looking at her because the realization that I won't be with her tomorrow hits home and I start crying. I have been with her for the last 2 and a half months every day. She is one of the three reasons I am here and I wake up every morning. I hope to know something before I fly out because leaving with a huge unknown will make me worry more. Thank you for all the prayers and nice comments. We love hearing from everyone and it helps on the really hard days.

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  1. Just found your blog and Olivia's story today. Will be keeping you all in my thoughts and prayers. I can't imagine how difficult it will be for you to be away from your sweet HLHS warrior, but I'm sure seeing your older two will help soothe your heart.

    My son Chase is now 27 months but I remember those early interstage days before his Glenn when we were so scared. This journey is hard but it IS doable! You can follow our story here and read my letter to new heart moms here.

    ((Heart hugs!))

    Mom to 2-year-old, Chase (HLHS) and
    HH 4-year-old Big Sister, "LO"

  2. The inter-stage is so hard but your almost there. We were admitted to CHOP once with Xavier before his Glen. It was so scary. He ended up needing a blood transfusion. Life after the Glen is better. It takes a few months for them to level out, but X has been great. Just know that there is a light at the end of the tunnel. We have an appointment at CHOP in February, so if your or your husband are still in the area and need anything, just let me know. We are coming from NJ so we can always stop at RMH and drop things off. We stayed there too..in the Harry Potter room! Please feel free to message me though Xavier's blog if you need to talk. Your all in our prayers every day and night. Heart Hugs from the Ross family!!

  3. I am glad everything came back normal...that is good news. I know it is hard to go back to work and not be with your sweetie every second of every day. Your husband will be there and will keep you informed of everything that is going on. Hopefully they can spend a little time out of the hospital again before she has her Glenn. The inter-stage is really hard and scary. Just know that after the Glenn, life gets 'normal' for a long time (at least for us because Hope won't be having her Fontan until she is 4-5). We have not been in the hospital since March of 2010 when she had a cath to open her pulmonary artery. It is soooo normal and soooo nice and soooo different than we were told it was going to be.

    Many prayers and heart hugs for you and your family.

  4. Mel, hang in there. I can only imagine how difficult it will be to leave. Brett will take good care and make sure to get answers. Yes, hopefully you'll know something more definitive today. Who knows, maybe Olivia's sats will stabilize today and she just missed Philly. Thanks for the continued updates. Hugs to you all!

  5. Mel and Brett I kknow you are going through a lot with that adorable baby girl but may prayers are coming your way. They will find answers. My love is always with you. Nathan and Delilah are looking forward to mommy coming home. I think they were worried about Olivia because we did talk a llittle about Olivia and they missed you all. Even though they didn't sleep much last night they did well in school today. Their teachers each sent me a text. I guess at school they don't have to worry and they have lots to distract them. Love you all Nana


Olivia loves to hear her mommy/daddy read your comments!