Thursday, August 11, 2011

Major milestones this week

This week we have reached several major milestones.
1. Delilah turned 3 on Tuesday! I can't believe it was only three years ago exactly that I was sitting in the NICU watching her under double phototherapy and crying because my beautiful baby girl was having SVT for no reason.
2. Nathan started the 2nd grade today. He has real textbooks, like really serious ones that are heavy for even me to carry. He took his first day in stride and like it was no big deal was a trooper getting back into the routine.
3. Delilah starts Pre-K 3 tomorrow for half a day and will be in big girl school with a uniform and all.
4. We held our first fund raiser meeting this week and had a great turnout. We have started to get gift certificates and donations in the mail so coming home to get the mail is like Christmas but better everyday.
5. I am slowly starting to think of October and when I have to leave my babies behind. I started a meal train, thanks to Ann Theriot's suggestion for meal donations, that will help Brett out when I am not here. Here is the link:
6. I sold my first tickets to the event to the awesome unit secretary and her husband where I work.

Now the bad for the week:
1. Naturally, all of this plus school and work is taking it's toll on me. I have been getting to bed later and later each night and I am definitely starting to feel it. All of the stress has also started to make me contract. I am way too early to have Olivia yet, so I am trying to squeeze in rest when I can and hydrate as much as possible.
2. My anxiousness about leaving town has me waking up in the middle of the night to be sick. I have never been this sick for any pregnancy. Thank God this is the last one.
3. My sweet dog from childhood passed away today after 13 years. he was such a sweet pup.
4. CHOP billing after being rude with me was very nice to Brett and straightened out all of the insurance for when Olivia arrives. My insurance still will only cover half, but at least she will be covered.

So as you can tell, busy for us is an understatement. I hope to have more information of the fundraiser and major donations soon.

1 comment:

  1. Hi - A friend posted a link on facebook to your fundraiser for your baby with a congenital heart defect. I can only imagine it's a scary time, and I'm sending light and love to all of you.

    I was born with a CHD too - Tetralogy of Fallot & an absent pulmonary valve. Have been through two open heart surgeries to put in mechanical valves & other cardiac issues.

    I see a pediatric cardiologist at Ochsner on Jefferson. His name is Dr. Thomas Young, and he is amazing, kind, compassionate, and unbelievably smart in helping me manage the problems associated with my heart stuff.

    His nurses are wonderful, and the whole office is just full of happy, caring people who understand how tough it is to have a kid with heart issues. :)

    It looks like Olivia will be born in Phily, but Dr. Young might be a good resource for you in Nola.

    Also, my pediatric cardiologist growing up was Dr. James Reynolds - he was at Baptist then went to Tulane. I don't think he practices any more, but almost every doctor I've met knew him when it came to CHD, it seems. It seems to be a small world when talking about chd in New Orleans.

    There's a lot of great information online - it might be overwhelming at times - but the congenital heart network has pretty good resources.

    Please feel free to contact me if there are any questions you might have - or if you want to talk to my parents on how they handled raising a baby with a CHD. My email is

    Also, there's been so much progress in helping kids with heart issues. My family waiting til I was 14 to have my first surgery, but now they can do so much with babies! It's truly amazing! (I'm 37 now and have been relatively healthy most of my life until my 2nd surgery two years ago).

    And if you want heart warming (hahaha) commercial, the kid in that VW commercial with playing Darth Vader was born with a congenital heart defect. Again, it's just nerve wracking when dealing with trying to help your baby with heart issues, so I'm keeping you in my thoughts and prayers!


Olivia loves to hear her mommy/daddy read your comments!