Thursday, August 4, 2011

Good news healthy baby bad heart

Buy tickets to the fundraiser!

We had a growth ultrasound today. Olivia is measuring just right, on the 55th percentile. All her organs and pieces are right where they need to be. Finally some good news. Then we heard the microarray for our amniocentesis was all negative 46 or 48 healthy double X chromosomes. All girl and all healthy.

Children's of Philly (CHOP) called us today and it was reassuring to hear someone so confident about what we needed to do and diagnosing it exactly. I found out today that there is no left ventricle that can be seen, so it is definitely HLHS. We are planning on going to CHOP at 30 weeks, the beginning of September probably. Ever doctor we have talked to in town keeps saying go to CHOP, at some point you have to take advice that is given to you.

Fundraiser planning is going well the family and friends are helping so much, I think it is going to be a huge success. We are also going to get a lot of media attention hopefully, and get some good HLHS awareness out there.

Come to the fundraiser and bid on 2 saints season tickets, 6 hour charter boat for 3 people, 2 tickets to a playboy golf tourney before party, 4 spots on a mardi gras truck float and who knows what else. We have a band too! By Friday I think we'll have 3 more bands. Good night and thanks for reading our blog.

1 comment:

  1. This is amazing! I was blown away by both of y'all's dedication to your baby girl. I'm glad for the good news! It makes me so happy to see that you have such good support from family and friends, and if there is anything I can do, please let me know. All the best to you, your family, and, of course, baby Olivia!


Olivia loves to hear her mommy/daddy read your comments!