Woah... it's been a while

      So today as we head to Philly for follow-up on the Neuro study, I have realized it has been a while since we posted anything. Olivia has been doing great and thriving like no one could have ever expected. She has truly amazed us and her local doctors. She is even fitting in a size bigger than she should be. Her sats are usually in the high 80's to low 90's. Not quite where we wanted them, but she has never really been on the high side when it comes to her oxygen sats. She is exerting her independence and knows how to throw a good hissy fit. Typical 2 year old, some may say. We are loving every minute of watching her grow and interact with her older brother and sister.

     Tonight, we will arrive in Philly with early developmental appointments tomorrow and cardiology visits with the team up there. On Tuesday, she will undergo anesthesia so they can do a brain MRI and a bronchoscopy. She breathes so heavy when she does anything that we are hoping this will give us some answers and maybe even a fix for her. Wednesday, we will spend the majority of the day recuperating and fly home late as long as we don't encounter any bumps. We will update as we know more. While we have some down time I may even get to upload some new pictures.