Monday, September 9, 2013

Hectic and worried but good

Olivia and I made it home safe and sound August 28th. We have had a busy week or two getting back to business as usual. We are seeing the cardiologist because her pleural effusion is not completely gone and instead of weaning diuretics, we are adding more to it.
   Olivia is still not back to her usual appetite of vaccum cleaner and has lost a good bit of weight. She is playing longer with less huffing and puffing but we have yet to see the "FONTAN" energy yet. We will continue to see her new cardiologist... Which is a story for later... And hopefully transition to her new function as a fontan kid.

  We can't thank everyone enough for all of the prayers, thoughts, encouraging words, and still need them to keep coming. We aren't out of the woods yet, but are trying to find the path.

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