Sunday, May 20, 2012

Another day another issue

That has been our motto since July of last year. It is crazy to think it is almost a year already. We have weathered some storms better than others but we are taking it one day at a time. There are times, like this week, when things come up and I am a ball of nerves and anxiety. This is my third child, I should be a pro at all of the silly things like viruses and vomiting. Yet, I am far from it. Then it is the pediatrician calling on a Saturday morning when you know she has a million other things to do than call you, but she does anyway and that is why I trust her with the three best things in my life.
There is still the anger at the disease and how we went from being carefree to careful. We can't make plans for a year from now or even six months from now. We have to take it day by day. That has become our life. We have accepted it and we are thankful for each moment with sweet Olivia. To the everyday events, many are her firsts and each one is special. As crazy as it sounds, Olivia went to Walmart today for the first time in kenner and loved every minute. So we continue onward, trying to enjoy the little things.

1 comment:

  1. Melanie,

    I think I made a comment one time, (brain fart) but I sell products to Cam's grandma. My kids have a rare genetic disorder from their dad, didn't know until he was near death. The boys are 18 and 21 now, I still worry all the time, cancer, sluggish digestive track, much more. We divorced over this, then a custody battle, he makes the money, he took the kids out of state. I'll always be angry, I had the perfect pregnancies, deliveries, and life fell apart. I had some therapy, take stuff for depression (runs in the family) sleep...but life has to go on. I'll be with the boys in June when Maxwell graduates HS, and probably both boys will come out to OR in July. I will never get those years back, I still treat them like kids to relive the years I missed. My ex won't keep me abreast of anything medically, so I have to always call the drs. 3000 miles away and bug them. You have family and a network of other families you can talk to, I don't know anyone with this. Just love those kids, keep your marriage strong and don't say no when someone wants to help...or just let them listen to you vent....always the best for all of you...Sally Royston


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