tag:blogger.com,1999:blog-793772659866386394.post597358993122014232..comments2023-03-26T09:02:06.239-05:00Comments on Olivia's Special Heart: Our HLHS Journey: Olivia is a perfectly healthy, and developmentally sound 4 month oldMelaniehttp://www.blogger.com/profile/07975116801763990568noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-793772659866386394.post-37773431164724849562012-02-23T20:19:47.322-06:002012-02-23T20:19:47.322-06:00I like to read your blog and updates about Olivia....I like to read your blog and updates about Olivia. My nephew was also born with HLHS. He got his first surgery and was doing well but started having issues with his O2 levels.No one in our family had ever heard of it. Unfortunatly he got his wings at 6 weeks old. It has been a very hard thing for our whole family but most of all his parents. I pray everyday for Olivia and hope that she gets every chance my nephew didn't. <br /><br />I decided to comment on this post because my son was born at 30 weeks. He weighed 2.5lbs and stayed in the NICU for 57 days. We had plenty setbacks but made it through. He was diagnosed with Periventricular leukomalacia (PVL), which is not anything I wanted to hear. We were told he would probably have problems walking, talking, hearing, seeing and all kinds of upsetting things that as new parents, we did not want to hear. However, a children's neurologist at Oshners gave us some hope. He said that sometimes a child's brain compensates for what damage they may have. Luckily, my son will be two next month, and he walks, talks, plays, sings and is a healthy little boy. He is a little behind meeting his milestones, but is meeting them. <br /><br />Miracles happen everyday, I have seen them with my own eyes. <br /><br />Keep the updates coming, Olivia gives me hope for babies born with HLHS.Anonymousnoreply@blogger.com