Tomorrow will make 4 months old for sweet miss olivia. To think of the past four months, it is very easy to see the hard and tough times we have all been through. Her scars are proof of that. Yet, the happy times seem to get pushed to the side. Our sweet baby is here with us another day. She is laughing, smiling, and touching lives for the better. We have been embraced by a wonderful heart mom community and the great community at CHOP, not to forget our families and friends here at home. She has strengthened our family unit to a point where I never even imagined possible. She has also taught us many valuable lessons. We dont take life for granted anymore because it can simply change in an instant. We dont cherish the goods we have in our home because when it all comes down to it, the memories are what is priceless. We also have learned how crucial it is to tell people just how much you care and mean it. So while we only have 15 more days until her second surgery, I am choosing to enjoy the good things she has given us so far. Sure, the worry and stress are still there, they wont ever really go away, but at this point I am so proud to say, "I am Olivia's mom and my baby will be a big 4 months today."
Wednesday, February 29, 2012
Monday, February 27, 2012
CHOP has opened their doors once again for our sweet little lady. She is being a good girl so far. Her xrays were pretty clear, they are just going to try putting her back on lasix to help pull some of the fluid off of her lungs so she can breathe a little easier. Hopefully we'll be out of here tomorrow afternoon, thats my prediction.
Brett and olivia were sent to the er after being seen by the pediatrician. Olivia is breathing very fast but doesn't have low sats or anything else that looks iffy. They don't know what is really wrong. Needless to say, I am freaking out in nashvilles airport. They are going to admit her overnight, get a chest xray, an iv, and watch her breathing. If it doesn't get better or they want to do anything, back I will go tomorrow. The only reassuring thing is nothing else is wrong. In a way though I wish there was something obviously wrong that they could easily fix. My stress level and anxiety would be so much better that way.
Olivia is waiting to get an iv for a cautious overnight hospital stay to be monitored. They took a chest xray and are reviewing her echo from last week. We'll see if the fast breathing amounts to anything. Sats and everything else is fine. I'll update tonight. Meanwhile Melanie left today and got all this great news during her layover.
A couple of nights ago, I realized she was breathing really fast almost panting. We called chop and they said to watch her. Today, they wanted her to be seen in the office of the peds. Brett dropped me off and brought her. Now I sit on a plane hoping I dont have to turn around and fly back. We shall see.
Today is a sad day because I leave philly to return home. But that is not the only reason I am sad. Today while adding up breastmilk, 13.5 liters, I realized olivia only has 18 days until her Glenn surgery. Honestly, I have known this day was coming but I have dreaded every minute of the process. To know the pain, agony, torture and process is overwhelming to say the least, but to know it will be happening to your little one makes the burden even harder. I don't look forward to seeing her again because that will be d-day, surgery pre-op day. Here is a picture of her today before I leave.
Saturday, February 25, 2012
I arrived to a very emotional husband, the baby care is increasing his estrogen levels, and an adorable baby girl that is now fun to play with. I love taking pictures as she smiles and goos. Unfortunately, yesterday I woke up with a sore throat, so I haven't been able to love all over her. I do get to do all the fun stuff like baths, clipping her nails and feeding her. The things you take for granted when you get to do them everyday. I am loving every minute.
Wednesday, February 22, 2012
Tuesday, February 21, 2012
We were having a great time andbu then Brett called. Let me start by saying olivia is fine. Now to the real issue. The ronald McDonald house is kicking them out effective tomorrow. I am so angry! First it was trade rooms, now it is get out. I was so angry I wrote the corporate office to offically complain. Now, brett has to find either a flight home or a place to stay. It is ok for international people to stay while not being seen, but new orleans isn't far enough apparently. She is meeting their criteria for twice weekly visits but they still want them out. I am over them and this whole current situation.
Here are some pictures before he called.
Saturday, February 18, 2012
She's already trying to hold her bottle. Everything is going great just waiting for our appointment on Monday. She's had a few reactions to formula which makes up one third of 6of her daily bottles. Lots of spitting up now but I still just give her breast milk at night just in case. She's doing a lot more giggling, she actually thought I did something so funny she was giggling without me even touching her. I'll post a essay update tomorrow
Wednesday, February 15, 2012
Friday, February 10, 2012
Sunday, February 5, 2012
Friday, February 3, 2012
I arrived safe and sound. I am very excited to be here. She has gotten so big. I didnt get a big happy grin but seeing her is so nice. The moms here have helped brett so much while I have been home. Seeing her has made me realize how much I have missed out on and made me a tad weepy. I will post more while I am here. Brett can't master posting and olivias care just yet, so sorry for the delay.
This morning I waited at 6: 30 in a ridiculous line for a randazzo king cake. All because my husband requested it. So now the king cake is sitting with me at the gate after being scanned by security. We cant wait to get to philly. I have gotten quite a few envious looks and comments. I am anxious to see my baby again.